Directory of Related Links:

Website Name: www.ukparachuting.co.uk

Website Address: UK Parachuting

Description of Website: Experience one of the ultimate adrenaline rushes for free whilst raising vital funds for LOADS All we ask is that you raise the minimum amount of sponsorship of £300.00 - in return you will receive expert tuition before being flung from a plane at 12,000 feet! Daredevil supporters of all ages have risen to the challenge already. Do you have what it takes to join them? BOOK NOW!!! Click here to make an online booking today! http://www.goliathres.com/res_web_directory.asp?supplierCode=ukp100&activityId=46 For general information about skydiving for LOADS contact using phone/fax number or e-mail below: - UK Parachuting Tel: 01953 861030 Fax: 01953 861031 Web: www.ukparachuting.co.uk Email: jump@ukparachuting.co.uk

Website Name:  Dribbly-Dudes

Website Address: http://www.dribbly-dudes.co.uk

Description of Website: This a site that makes bandana bibs for your little dribblers.You can look at what they have to offer and order online.

Website Name: Department for Education and Skills (DfES)

Website Address: http://www.dfes.gov.uk/index.htm

Description of Website: Central government department responsible for education. Gives out, free to parents, the essential SEN Code of Practice and the less essential but very helpful Special Educational Needs: a guide for parents. Copies of the Code (quote reference number 581/2001) and parents’ guide free from: Tel: 0845 6022260 Sanctuary Buildings Great Smith Street London SW1P 3BT Tel: 0207 925 5000 Web addresses: DfES/Teachernet SEN home page: http://www.teachernet.gov.uk/wholeschool/sen/   SEN Code of Practice: http://www.teachernet.gov.uk/docbank/index.cfm?id=3724   Local Authorities address Finder http://www.dfes.gov.uk/leagateway/index.cfm?action=address.default

Website Name: The Family Fund

Website Address: http://www.familyfund.org.uk

Description of Website: The family fund helps families of disabled or seriously ill children under 16. It gives grants for holidays, leisure, laundry equipment, driving lessons and more. Range of information includes benefits, transport, holidays, more. If your income is £23,000 or less they may be able to help. Apply by phone or online. PO Box 50 York YO1 1UY Tel: 0845 13045 42 E-mail: info@familyfund.org.uk

Website Name: Benefits Now

Website Address: http://www.benefitsnow.co.uk

Description of Website: From a charity for brain-injured children, but very helpful for parents of children with DS: a ’68 page’ step-by-step guide to claiming DLA for children under 16 years of age who have a brain related condition. The guide takes you through the claim pack, box by box, and contains lots of useful hints and tips on: preparing for a medical visit; obtaining supporting evidence; keeping a DLA diary and much more.

Website Name: Children’s Legal Centre

Website Address: http://www.childrenslegalcentre.com/

Description of Website: Runs an advice service on all aspects of law and policy affecting children and young people. University of Essex Wivenhoe Park Colchester Essex CO4 3SQ Tel.: 01206 874 807 (education law and advocacy) E-mail: clc@essex.ac.uk

Website Name: Disability Rights Commission

Website Address: http://www.drc-gb.org/index.asp

Description of Website: The Disability Rights Commission (DRC) is an independent body set up by the Government to help secure civil rights for disabled people. It advises and assists disabled people in pursuing those rights using the provisions of the Disability Discrimination Act 1995. It also campaigns to improve the current position. Helpline 8.00 am to 8.00 pm Monday to Friday: Phone 08457 622 633 Fax 08457 778 878 Textphone 08457 622 644 Mail: DRC Helpline, Freepost MID 02164, Stratford-upon-Avon CV37 9BR E-mail: inquiry@drc-gb.org

Website Name: The Council for Disabled Children (CDC)

Website Address: http://www.ncb.org.uk/cdc/

Description of Website: Information sheets on disability, special needs and general children’s services. 8 Wakley Street London EC1V 7QE Tel: 0207 843 6000

Website Name: The Advisory Centre for Education (ACE)

Website Address: http://www.ace-ed.org.uk/

Description of Website: Offers information and advice on all aspects of the maintained education service. They produce an immensely useful handbook, the Special Education Handbook. Unit 1C, Aberdeen Studios 22/ Highbury Grove London N5 2DQ Advice line: 0808 800 5793 (2pm--5pm) Exclusions advice line: 020 7704 9822 Business line: 020 7354 8318

Website Name: Independent Panel for Special Education Advice (IPSEA)

Website Address: http://www.ipsea.org.uk/index.htm

Description of Website: IPSEA is a registered charity, which aims to give free advice and support to parents of children classified as having special educational needs. Has a network of volunteers who can offer free independent second opinions during statementing, advice line support and representation at tribunals. Highly recommended by parents who have used it. If you want to know more, send an SAE to the address below, or check the web site. The web site contains news, legal advice and summaries of case law, downloadable model letters for use in such situations as failure to implement a statement, and an order form for IPSEA’s self-help guide to the SEN Tribunal. IPSEA 6 Carlow Mews Woodbridge Suffolk, IP12 1DH Tel: 0800 018 4016 (free phone advice line)

Website Name: Down’s Syndrome Association

Website Address: http://www.downs-syndrome.org.uk/

Description of Website: This is the main British organisation for DS. The headquarters is shown below, but there are local branches all over the UK, run by parent volunteers. Has expert advisers on tap, publishes newsletter and lots of leaflets/booklets/videos. It also includes people with DS on its board of trustees, as it wants to become an organisation of people with DS as well as one for them. The web site includes information for new parents, contact info. for regional officers, fact sheets, campaigning info, etc. Langdon Down Centre 2a Langdon Park Teddington TW11 9PS Tel: 0845 230 0372 Fax: 0845 230 0373

Website Name: Makaton (Volcabulary development project)

Website Address: http://www.makaton.org

Description of Website: I have been on this site ,you will be able to find Resources, Training, Family Advice, User Forum and Research, or subscribe to the freee-mail newsletter.The only thing is when I used it a screen comes up for (enter network password) I canceled this and you then get the page you want, but this happens every time you choose a new page to veiw

Website Name: The Challening Behaviour Foundation

Website Address: http://www.thecbf.org.uk

Description of Website: The Challenging Behaviour Foundation exists to demonstrate that individuals with severe learning disabilities who are described as having challenging behaviour can enjoy normal life opportunities when their behaviour is properly understood and appropriately managed, and to support parents and carers through education and information to enable this to happen. The Challenging Behaviour Foundation, c/o Friends Meeting House, Northgate, Rochester, Kent, ME1 1LS. Tel: 01634 838739 Email: info@thecbf.org.uk Website: www.thecbf.org.uk

Website Name: Sport Courses for People with Disabilities

Website Address: http://www.chelmsfordbc.gov.uk

Description of Website: The Sports Development Unit at Chelmsford Borough Council is committed to increasing the awareness, inclusion and activity level of people with disabilities.

Website Name: No Limits

Website Address: http://www.nolimits.org.uk

Description of Website: We provide information and support for people with Down's syndrome, their families and carers, as well as being a resource for interested professionals. We strive to improve knowledge of the condition. We champion the rights of people with Down's syndrome. This website is for disabled people in suffolk. Young people have helped to put it together and hope you find it useful and fun.

Website Name: The Downs Syndrome Educational Trust

Website Address: http://www.downsed.org

Description of Website: The Down Syndrome Educational Trust is a registered charity, based in the UK, and a recognised leader in scientific research intothe development and education of individuals with Down syndrome. Building on this foundation of original research, the Trust publishes practical information about Down syndrome, organises conferences and workshops, and provides advice and consultancyservices.

Website Name: Down's Syndrome Research Foundation (Charity No:1058548)

Website Address: http://www.dsrf.co.uk

Description of Website: The Down's syndrome Reseach Foundation is a national charity that aims to relieve the sickness and suffering of children and adults who have Down's syndrome. We aim for early intervention and education through the publication of general information and research results to both the public and medical community. We have a very popular booklet called 'Bright Beginnings'. This booklet is for parents who have just been told that their baby has Down's syndrome. We have, however, had requests for copies from not just new parents, but also doctors, midwives and health visitors across the UK.

Website Name: Down Syndrome Health Issues

Website Address: http://www.ds-health.com

Description of Website: I,m a paediatrician and the father of Avi, 11 years old, and Nathan, 13 years old. Avi has Down Sydrome ("DS"for short) and has inspired me to write these essays about children with DS for other parents. I have put them here for general reading. You may e-mail me with any questions about these essays. I have also encluded some other pediatric items of interest for parents.

Website Name: Special Needs Harness Restraint Systems

Website Address: http://www.safetyfirstsales.com

Description of Website: Our many years of experience in determining and developing solutions for special needs enables us to offer the best advice and best seats and accessories available, we offer a range of standard and hyperactive harness, suitable for cars, MPV's and buses.

Website Name: Welcome to British Sign Language.

Website Address: http://www.britishsignlanguage.com

Description of Website: Welcome to British Sign Language, this site uses moving pictures to show the basic signs for British Sign Language.

Website Name: Down syndrome Medical Interest Group UK

Website Address: http://www.dsmig.org.uk

Description of Website: Down syndrome Medical Interest Group UK This site provides essential information for healthcare professionals on `best practice`medical care for people with Down's syndrome in the UK and Ireland. It has been produced by the UK Down's syndrome Medical Interest Group (DSMIG), a network of doctors whose aim is to ensure equitable provision of medical care for all people with Down's syndrome in the UK and Ireland.

Website Name: Children's Heart Association

Website Address: http://www.heartchild.info

Description of Website: We are the families and friends of children with congenital heart disorders. Fromed in the UK in 1973, Children's Heart Association (formerly The Association for Children with Heart Disorders) is a support group run by families and friends of cardiac children for families with, or who have had, children with heart disorders. The children's Heart Association is a charity based in the North West of England. We are members of the Children's Heart Federation(www.childrens-heart-fed.org.uk) and have a sister charity, the Scottish Association for Children with Heart Disorders (www.sachd.org.uk) which has branches throughout Scotland.

Website Name: Mencap

Website Address: http://www.mencap.org.uk

Description of Website: Mencap is the UK's leading learning disability charity working with people with a learning disability and their families and carers.

Website Name: Special Kids In The UK

Website Address: http://www.Specialkidsintheuk.org

Description of Website: This site is for families in the UK who have a child (ren) of any age with a special need.All families of children with special needs deal with similar concerns with support, education, respite and therapies. Special kids in the UK aim to provide that vital support when it's first needed and throughout your child's life.